As a parent of a nonverbal child with autism, our journey has been a tapestry woven with both challenges and triumphs. One of the most significant threads in this tapestry has been understanding sensory processing disorder (SPD) and its profound impact on my son. SPD is often found in children on the autism spectrum and manifests in various sensitivities and reactions to sensory stimuli. By sharing our experiences, I hope not only to advocate for my son but also to raise awareness and support others who are facing similar challenges.

Sensory processing disorder refers to the brain’s difficulty in interpreting and responding to sensory information. This can include sensitivities to light, sound, touch, taste, and smell. For children like my son, everyday environments can become overwhelming and stressful, leading to withdrawal or, when multiple irritations stack up, meltdowns.

Simple activities, such as grocery shopping or attending social gatherings, can be daunting for my son. Bright lights and loud noises in stores often lead to sensory overload. I vividly remember a trip to a crowded supermarket; the bright fluorescents seemed to pulse, and the announcements echoed. My son quickly became agitated, covering his ears, his stimming became louder, and he was tensing up. In that moment, I realized that what might seem like a routine errand to others was an overwhelming experience for him.

At home, certain textures can trigger strong reactions. For instance, he struggles with shirts that feel staticky against his skin, finding certain fabrics unbearable. This has taught me the importance of being mindful of his clothing choices and providing comfortable alternatives. Food can also be particularly challenging; he tends to avoid trying new things and prefers to stick to familiar favorites.

Through trial and error, we’ve developed strategies to help him navigate these sensory challenges. Here are some approaches that have worked for us:

1. Creating a Sensory Retreat: We’ve designated his room as a “sensory retreat.” It’s equipped with soft pillows, weighted blankets, dim lights, a soft rug, a rocking chair, and calming toys. When he feels overwhelmed, he knows he can retreat to this safe space to decompress.
2. Establishing Routine: A consistent daily routine has helped my son feel more secure. Knowing what to expect reduces anxiety and prepares him for sensory-rich environments.
3. Visual Supports: Visual schedules, social stories, and his communication device have been invaluable in preparing him for new experiences. By explaining what he might encounter, we can discuss potential challenges and strategies in advance.
4. Stimming: I’ve witnessed how stimming helps my son regulate his emotions and navigate challenging situations. For example, during a busy family gathering, the noise and commotion can quickly become overwhelming. In those moments, I see him begin to pace or hum softly to himself, “eee”. This rhythmic movement offers him a sense of grounding, helping him find calm amidst the chaos. Stimming, or self-stimulatory behavior, encompasses a wide range of actions, such as hand-flapping, rocking, spinning, or making sounds. For many children with autism, these behaviors serve as a way to self-soothe, manage sensory overload, or simply express joy. It’s a natural response to their unique ways of interacting with the world around them.

As we navigate the complexities of SPD together, I’ve learned to embrace my son’s unique perspective. His heightened awareness of sensory details often leads to moments of profound wonder. He notices the rustle of leaves, the patterns of sunlight through trees, he watches every ripple and wave in the water, and the intricate details of everyday life that many of us overlook. This sensitivity, while challenging, enriches our shared experiences and deepens our connection.

Connecting with other parents of children with autism has been incredibly beneficial. Sharing stories and strategies creates a sense of community and reassurance. Support groups, both in-person and online, serve as lifelines for parents seeking understanding and advice. If you’re on a similar journey, know that you’re not alone. Together, we can navigate the complexities of sensory processing and celebrate the unique perspectives our children bring to the world. Let’s continue to learn, share, and support one another in this remarkable journey of parenthood.

Living with a son who has autism and sensory processing disorder has reshaped my understanding of the world. While the challenges of navigating what works and what doesn’t can be overwhelming, they are accompanied by moments of profound beauty and connection. By focusing on understanding his sensory needs and advocating for him, I aim to create a nurturing environment where he can thrive.

By Kayla Myers, Family Peer Supporter

July 29, 2024

Receiving an autism diagnosis for your child can feel overwhelming, but it's also the beginning of a journey filled with hope, learning, and growth. As a parent, you may experience a whirlwind of emotions, from confusion and fear to relief and determination. Understanding how to navigate this new path will be filled with challenges but will eventually help you to provide the best support for your child and family. Here’s a compassionate guide to help you through this journey.

1. Allow Yourself to Process Your Emotions
It’s natural to feel a range of emotions upon receiving an autism diagnosis. It is important to give yourself permission to grieve the loss of the "expected" path for your child and then start to embrace this new reality. Talking to a counselor or joining a support group can be invaluable during this time.

2. Educate Yourself About Autism
Knowledge is power. Educate yourself about autism spectrum disorder (ASD) by reading reputable sources, attending workshops, speaking with professionals, and listening to others who have been diagnosed with ASD. Understanding the spectrum and recognizing that each child with autism is unique will help you better support your child.

3. Build a Support Network
Connecting with other parents who have navigated an autism diagnosis can provide emotional support and practical advice. Look for local or online support groups, forums, Family Peer Supporters, and social media communities. Networking with professionals like pediatricians, therapists, and special education teachers can also provide guidance and resources.

4. Create a Comprehensive Plan
Work with professionals to develop an individualized plan for your child. This might include therapies, educational strategies, and interventions tailored to your child's needs. Be proactive in setting up evaluations and seeking out specialists to address areas like speech, occupational, and behavioral therapy.

5. Advocate for Your Child
Be prepared to advocate for your child in various settings, including school, therapy sessions, and medical appointments. Understand your child’s rights and work with educators and therapists to ensure they receive the appropriate accommodation and support.

6. Focus on Strengths and Interests
While addressing challenges is important, don’t forget to celebrate and nurture your child’s strengths and interests. Encourage activities that they enjoy and excel in, as these can boost their self-esteem and provide meaningful outlets for expression.

7. Promote a Positive Home Environment
Create a supportive and understanding home environment. Use clear communication, establish routines, and offer plenty of positive reinforcement. This helps your child feel secure and can reduce anxiety and behavioral challenges.

8. Practice Self-Care
Caring for a child with autism can be demanding. Don’t neglect your well-being. Make time for activities that rejuvenate you, seek respite care when needed, and lean on your support network. Taking care of yourself ensures you’re better equipped to support your child.

9. Stay Flexible and Patient
The journey with autism is unique for each family. Be prepared for trial and error as you find what works best for your child. Flexibility and patience are crucial, as progress may come in small, incremental steps.

10. Celebrate Milestones
Acknowledge and celebrate your child’s achievements, no matter how small they may seem. Each milestone is a testament to their hard work and growth, and recognizing these moments reinforces positive behavior and motivation.

Navigating an autism diagnosis as a parent is a journey filled with challenges and triumphs. By educating yourself, building a support network, advocating for your child, and focusing on their strengths, you can provide a nurturing and empowering environment for your child. Remember, you are not alone on this path, and with patience, resilience, and love, you can help your child thrive.
To find more information about navigating a diagnosis as a parent or caregiver, check out https://mtpeernetwork.talentlms.com. Soon you will find many training’s built by parents and caregivers based on their own lived experiences.

(Written by Kayla Myers and ChatGPT was used to build an outline)

by Open AI ChatGPT

October 24, 2023

Sensory Processing Disorders (SPD) are a complex and often misunderstood set of conditions that affect how individuals perceive and respond to sensory stimuli from their environment. These disorders can have a profound impact on a person's daily life, from their ability to interact with others to their emotional well-being. While much progress has been made in understanding SPD in recent years, there is still much to learn about its causes, symptoms, and treatment options.

What Are Sensory Processing Disorders?

Sensory Processing Disorders, often abbreviated as SPD, refer to a range of conditions that affect the way an individual's nervous system processes and responds to sensory information from the environment. While sensory processing is a natural and continuous process that occurs in everyone, individuals with SPD experience difficulties in this domain. Sensory information includes what we see, hear, touch, taste, and smell, as well as our internal sensations, such as balance and body awareness.

SPD can affect people of all ages, from infants to adults, and it can manifest in various ways. It's important to note that SPD is not recognized as a standalone diagnosis in the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) but is often associated with other developmental, neurological, or psychological conditions.

The exact causes of SPD remain a topic of ongoing research and debate. However, several factors are believed to contribute to the development of sensory processing disorders: genetic factors, premature birth or low birth weight, brain development, environmental factors, and neurological conditions.

SPD is not a one-size-fits-all condition. It encompasses a wide range of sensory processing issues, and individuals may experience a combination of these issues. The commonly recognized types of SPD are as follows:

1. Sensory Over-Responsivity (Sensory Defensiveness): Individuals with sensory over-responsivity are hypersensitive to sensory stimuli. They may become overwhelmed by everyday sensory experiences, such as bright lights, loud sounds, or certain textures, which can lead to strong emotional reactions.
2. Sensory Under-Responsivity: In contrast, individuals with sensory under-responsivity have a reduced response to sensory stimuli. They may not notice certain sensations or may require intense sensory input to register and respond to stimuli. This can result in difficulties with alertness and engagement.
3. Sensory Seeking: People with sensory seeking tendencies actively seek out sensory stimulation. They may engage in repetitive behaviors or activities to satisfy their sensory needs, such as rocking, spinning, or constantly touching objects.
4. Sensory-Based Motor Disorder: This type of SPD is characterized by difficulties in coordinating and executing motor tasks that require precise sensory input. Individuals with this disorder may struggle with tasks like handwriting or activities that involve fine motor skills.
5. Sensory Discrimination Disorder: Sensory discrimination disorder affects a person's ability to accurately perceive and distinguish between different sensory stimuli. They may struggle to differentiate between similar textures, tastes, or sounds.

Symptoms of Sensory Processing Disorders

SPD can manifest with a wide array of symptoms that vary from person to person. These symptoms can affect various aspects of an individual's life, including their behavior, emotions, and ability to engage in daily activities. Some common symptoms include:

1. Emotional and Behavioral Symptoms: Meltdowns or tantrums in response to sensory overload; Anxiety or withdrawal in sensory-rich environments;Avoidance of specific textures, tastes, or sensory experiences;Difficulty with transitions or changes in routine
2. Motor Symptoms:Poor coordination and balance; Clumsiness or difficulty with fine and gross motor skills;Tendency to be overly cautious in physical activities
3. Social and Communication Symptoms: Difficulty with social interactions and making friends; Challenges with personal space and boundaries; Limited eye contact or difficulty understanding non-verbal cues
4. Attention and Concentration Symptoms:Difficulty maintaining focus due to sensory distractions; Impulsivity or hyperactivity, especially in sensory-rich environments
5. Self-Care Symptoms: Aversion to grooming and self-care routines;Resistance to wearing certain clothing or shoes; Limited food preferences due to sensory sensitivities

It's important to note that not all individuals with SPD will exhibit the same symptoms, and some may display a combination of these symptoms. Additionally, SPD symptoms can change over time and may be influenced by various factors, including environmental conditions and stress levels.

Diagnosing SPD can be challenging, as it often co-occurs with other developmental or psychological conditions. An accurate diagnosis typically involves a multidisciplinary approach, with input from healthcare professionals, such as occupational therapists, pediatricians, and psychologists.

While there is no cure for SPD, individuals and their families can take steps to manage and address the challenges associated with these disorders. Treatment and management strategies are typically individualized and may include occupational therapy, sensory integration therapy, behavioral interventions, sensory diets, and environmental modifications.

Living with SPD can be challenging, but with the right support and strategies, individuals can lead fulfilling lives. Here are some tips for individuals and families coping with sensory processing disorders:

1. Education and Advocacy: Learning about SPD and advocating for understanding and accommodations in school or workplace settings can make a significant difference.
2. Sensory-Friendly Environments: Create spaces at home that cater to the individual's sensory preferences, and communicate with schools or workplaces about necessary accommodations.
3. Emotional Support: Seek out support groups and connect with others who have experience with SPD. Sharing experiences and coping strategies can be invaluable.
4. Self-Care: Encourage self-care practices that help reduce sensory overload and stress. These may include mindfulness exercises, relaxation techniques, or physical activity.
5. Patience and Acceptance: It's important for individuals with SPD and their families to be patient with themselves and each other. Accepting one's sensory differences is a crucial step in the journey.

You can learn more about SPD at STAR Institute.